odyssey

Part 8. Happy Hours, Picnics, and Team Meetings

The other day I found myself irritated with Wes. The infraction? He was standing at the sink, blocking access to the garbage. He was in the way, and I had something I wanted to throw away. Yes, he was emptying the dishwasher, or putting dishes away, or probably washing something in the sink; but really, I needed to throw away a wrapper, and he was in the way. On some level it was probably good to be irritated because it said we were back to normal. But, another part of me quickly realized the ridiculousness of being irritated as I found myself reflecting on what we went through last summer; the intimacy that came from being in the trenches together as we dealt with my condition. It was us in this little world we had created finding joy, love, and connection wherever we could.

We had what we called “Happy Hour” back then. When I couldn’t do anything but lay face down on the ottoman he would bring me my lemon water and join me. Joining me meant he laid down next to the ottoman, face-up, one leg crossed over the other bent knee. We could look at each other this way. I sipping lemon water from my Starbucks reusable plastic tumbler; he chatting with me. By his side was his Starbuck’s mug with the Paris logo, acquired from one of our trips to our favorite city. Ironically, the coffee being sipped was Peet’s. The conversation didn’t need to be heavy. It may have been as simple as a need to water the plants outside because the weather was hot, a return phone call that should be made, or what groceries needed to be purchased. When my water was done, Happy Hour was over; his coffee was probably cold because it is hard to drink hot coffee lying on your back. 

One day we had a picnic in our backyard. Fifteen feet from our back door we spread out a blanket. A plate, crackers and almond butter rounded out our spontaneous picnic. We laid there and talked, making almond butter crackers for one another. He did most of the making. and maybe most of the talking. I don’t remember the conversation, and yet, it is one of our fondest memories from last summer. Today, when we feel like a snack, and reach for the crackers and almond butter, one of us will always comment on that picnic, "Remember when we..." . 

During those few weeks that were difficult for me to walk I developed a routine when I needed to go to the bathroom. On the return trip from the bathroom to the family room, I would make a pit stop to the landing of our upstairs. We live in a tri-level house, which means, half way between the family room and our bathroom is a set of stairs, seven steps take you downstairs; seven take you upstairs. I would climb the seven steps and rest face down on the carpet, legs dangling down the stairs. This position was relieving to my back and gave me the rest I needed for the last short leg of the return to the ottoman. Wes would always join me there. I was reminded that we called them our "Team Meetings". Again, the conversation wasn’t deep; it was the connection, the closeness, his caring that felt incredibly intimate. Sometimes nothing might be said…in the quiet, darkness of the middle of the night, he might just lie there letting me know I wasn’t alone.

Today when I look at that spot it is our dog Toby who usually lies there, and occasionally, our other dog Ruby will join him. Dogs or humans, the carpet on the landing at the top of our steps has served an important, therapeutic function for some of us Meyers.

Every night I fell asleep to Wes rubbing the top of my head. He would keep massaging it until he could hear my rhythmic breathing. Whether I was awake or asleep he told me he always said, “I love you, Renee.” before he fell asleep. I heard him more than he realized, and sometimes, I still hear him. “I love you, Wes.” I would respond to myself. I knew if I said it out loud, he would want to keep rubbing my head. I wanted him to be able to go to sleep!

Later on, in the summer, when I was experiencing edema in my right leg, (another post some other time) I would lay across his lap so he could do a lymphatic massage on my leg. We had heard a song in yin yoga we liked by Paul Cardall called, "Life and Death". Whenever he massaged my leg, we would have Paul Cardall’s music on. I could only listen as I was facing away from the TV. Wes was able to watch. Here is the video from that time. Today we hear it and are reminded of last August...another moment of beauty, another moment of light that we found in the darkness of our circumstance.

Synchronistically, every time I sit down to write one of these posts a Paul Cardall song always plays on my Pandora station. (Right now, as I sit editing this post the day after I wrote the previous sentence, Paul Cardall's "Sweet Escape" is playing.)

Intimacy, connection, beauty, light. In an ironic sort of way, I can miss those times we had together. There are so many gifts that have come from my odyssey with cancer, and the intimacy it afforded Wes and I is one. Sadly, it took cancer for me to understand, to feel the depth of his love for me. Happily, cancer has given me this gift of understanding; to feel the love he has for me while I am alive; AND it has cracked opened my heart to be able to feel deeper levels of love in all aspects of my life. I love you, Wes…deeply, joyfully, unconditionally.

Part 2. Shock and Awe

My stomach has both been churning and tightening as the days on the calendar have been advancing this month. Each day represents a one year anniversary of sorts for me with the first really big demarcation being today. It was one year ago, April 23, 2015 that I went in for an MRI because of severe back pain.

The only place I could find relief...the infamous ottoman.

The only place I could find relief...the infamous ottoman.

The beginning of April 2015 I felt a hitch in my groin and as the weeks unfolded the pain spread to my back and right hip. I could not sit, I could not lie down with my legs stretched out, I walked with a limp and slept face down draped over an ottoman. It was the only position that gave me any sort of relief although my elbows and knees were rubbed raw. The pain was clearly getting worse, not better with time. 

I have had MRIs done a handful of times, but this one was excruciating because it required that I keep my legs stretched out straight, flat, and unmoving for the 40 or so minutes it took to complete the imaging. The minute I was rolled out of the tube I brought my knees up to my chest, rolled to my side, dropped to the floor and sobbed. Birthing two children paled in comparison to this pain. With the MRIs I had done before the technician always said the same thing upon completion, “ The radiologist will review the results and your doctor will be in touch.” On April 23, 2015 something different was said. “Your doctor happens to be in the building and can come see you now.” I thought how fortunate I was to be able to get an answer so quickly and not have to see him at our scheduled appointment the next day. Pain had clouded my discernment….when a doctor can see you NOW it means something is serious!  

My husband, Wes was sitting in one chair. I was kneeling on the floor, arms folded on the seat of another, head resting on my arms when the doctor came in. With a somber look on his face he said, “I’m afraid I don’t have good news. You have cancerous lesions on your vertebrae.” In pain and numb, I couldn’t really absorb the information. I heard the words but my being was saying “no”. There was an impenetrable shield surrounding me and were it not for that shield, it felt like I would have died with the force of that shockwave. Something I feared and fought for so long had come true. Breast cancer, a 2009 diagnosis, had metastasized.

Over the next few days, the impenetrable shield began to give way and in its place was a weird sort of comfort. Though the doctor spoke words you never want to hear, six years of wondering, worrying and fearing cancer’s return were over. I had an answer…there was no longer a question. Fortified with heavy duty pain killers, I don’t remember much of those early days other than I was “existing” not “living”. When I wasn’t in pain I was nauseous from the pharmaceuticals my body was unused to and I lay on the couch all day, everyday, panting, hoping to keep the vomit from erupting. Other than managing bodily functions, Wes was doing everything for me. I took no phone calls, saw few visitors, had no interest. I was tired. Tired of cancer being in my life, tired of fighting it, tired of thinking what the road ahead entailed. When I could think about the future, I could see no reason for wanting to experience it. The months ahead seemed daunting and for what purpose? It seemed like cancer had no interest in leaving me. I wanted to die; I was ready to die; I was ready for the relief it would bring physically and emotionally. My life force began to slip away. My biggest worry was how long it would take and could I tolerate the pain while alive. Until this moment in my life no one could have convinced me that given the pain my family would experience with my death I would choose death anyway...

Part 1. In the Beginning...

I have a story to tell. Are the stirrings in my stomach excitement or worry as I contemplate the telling of the story? My intention in creating this blog is to be of service and to do so in a way that is worthy of the time you will take to read it. There exists this space I desire to occupy. On one side is teaching and preaching. I'm uninterested in that. On the other side is a dry chronological accounting of a story. I'm equally uninterested in that. In between lies a space of sharing what happened; the feelings, the choices, the decisions and within that space of sharing is the potential for connection and relatability. That is where I hope to reside with each blog post.

 The stirrings in my tummy I’m sure have nothing to do with the vulnerability and honesty it will take to make it a worthy read!

The story is about an odyssey that a woman takes…is still taking. For a long time she felt like she was being followed by a silent predator always lurking, never leaving her alone no matter how she tried to separate herself from it. Unsafe, she ran. There were many strategies that fall under the category of running and she employed them all. One day she got confirmation that the predator had struck, had been striking for awhile, though her denial would not allow her to see it.  Devastated and sure the predator had won, she quit running and she gave UP. The real story starts there… and the telling of it starts tomorrow.